Scientific News

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy [read more]

The Wilson Aarhus 2024 symposium will be an up-to-date, evidence-based, clinically orientated symposium with distinguished international faculty. Basic, clinical and translational research work by junior investigators will also be presented. [read more]

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.  [read more]

Following the previous successful iterations in Hamburg, Newcastle, Vienna and Maastricht, this in-person workshop will focus on advancing research in AIH, strengthening existing networks and building new ones.  [read more]

The *Call for proposals of a program on orphan medical devices, in particular targeting paediatric patients* by EU4Health is currently [read more]

Biliary Atresia (BA) is a rare paediatric liver disease with an estimated prevalence of 1 / 14.000-21.000 births in Europe (~ 270 cases / year). Its aetiology is still unknown but recent studies favour an aetiology through microbe- or toxin-triggered immune dysregulation in liver and bile ducts leading to obliteration and fibrosis. [read more]