ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

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CPSS Position Paper

2024-01-18

New Position Paper on Congenital Portosystemic Shunts

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
New CPSS Position Paper Read More
CPMS Achievements 2023

2023-12-21

CPMS Achievements of the network in 2023

ERN RARE-LIVER and the CPMS helpdesk team would like to thank all ERN member centres for their commitment and effort in contributing to the Clinical Patient Management System (CPMS).
CPMS Achievements 2023 Read More
Strategy Meeting 2023

2023-12-21

Overview Strategy Meeting 2023

On 11 and 12 December, the Management Board of ERN RARE-LIVER met in Hamburg to discuss the network’s strategy for the next 4 years, the period covered by the next
Overview Strategy Meeting 2023 Read More

Scientific News

More Scientific News

2024-02-02

Registration is open: 12th European Conference on rare diseases and orphan products

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,
Registration is open: 12th European Conference on rare diseases and orphan products Read More

2024-02-05

3rd Wilson Aarhus Symposium 2-5 May 2024

The Wilson Aarhus 2024 symposium will be an up-to-date, evidence-based, clinically orientated symposium with distinguished international faculty. Basic, clinical and translational research work by junior investigators will also be presented.
3rd Wilson Aarhus Symposium 2-5 May 2024 Read More

2024-01-18

New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
New CPSS Position Paper Read More

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