ERN RARE-LIVER is a Europe-wide network for centres of excellence in the clinical management of rare liver disease in adults and children. Currently the diseases covered by the network include: Autoimmune liver disease (AILD), Structural Liver Disease and Metabolic/Biliary atresia and related diseases. The network aims to improve the standards of care and clinical knowledge in rare liver diseases across Europe. Working closely with the clinical centres, doctors and patients the network will: disseminate best clinical practice, use innovative IT solutions to enable clinicians to access expert knowledge across Europe, update clinical guidelines to enable standardisation of care and to provide patients with relevant high quality information.

How to Join