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News
More News2024-01-18
New Position Paper on Congenital Portosystemic Shunts
Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
2023-12-21
CPMS Achievements of the network in 2023
ERN RARE-LIVER and the CPMS helpdesk team would like to thank all ERN member centres for their commitment and effort in contributing to the Clinical Patient Management System (CPMS).
2023-12-21
Overview Strategy Meeting 2023
On 11 and 12 December, the Management Board of ERN RARE-LIVER met in Hamburg to discuss the network’s strategy for the next 4 years, the period covered by the next
Scientific News
More Scientific News2024-02-02
Registration is open: 12th European Conference on rare diseases and orphan products
The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,
2024-02-05
3rd Wilson Aarhus Symposium 2-5 May 2024
The Wilson Aarhus 2024 symposium will be an up-to-date, evidence-based, clinically orientated symposium with distinguished international faculty. Basic, clinical and translational research work by junior investigators will also be presented.
2024-01-18
New CPSS Position Paper
Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.