The list below provides a link to patient information on Rare Liver diseases. Please click on the logo to take you to the organisation's website.

 

 

The content of this report represents the views of the author only and it is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

Logo

Organisation

Language

Diseases / information

PSC Support

English

Primary Sclerosing Cholangitis

LIVErNORTH

English

Primary Biliary Cholangitis
Primary Sclerosing Cirrhosis/Cholangitis
Autoimmune Hepatitis
Hepatitis C/E
Primary Liver Cancer
Non Alcoholic Steatohepatitis and Fatty Liver
Non Alcoholic Fatty Liver Disease

Childrens Liver Disease Foundation

English

Acute Liver Failure
Alagille Syndrome
Alpha-1 Antitrypsin Deficiency
Autoimmune Liver Disease
Biliary Atresia
Choledochal Cyst
Cystic Fibrosis And Liver Disease
Gilbert’s Syndrome
Hepatitis B
Hepatitis C
Non-Alcoholic Fatty Liver Disease
Progressive Familial Intrahepatic Cholestasis
Wilson’s Disease
Transplant

Polycystic Kidney Disease Charity

English

Polycystic Liver Disease

FILFOIE -French Network for rare liver disease in adults and children

French

Rare Liver Disease

PSC Patients Europe

26 Languages

Primary Sclerosing Cholangitis

Association Bernard Pépin pour la Maladie de Wilson

French

Wilson’s Disease

PBC Foundation

English

Primary Biliary Cholangitis
 

Deutsche Leberhilfe e.V.

German

Alcohol and liver
Autoimmune hepatitis (AIH)
Fatty liver (NASH / ASH)
Hemochromatosis (iron storage disease)
Hepatic encephalopathy (HE)
Hepatitis A (HAV)
Hepatitis B (HBV)
Hepatitis C (HCV)
Hepatitis D (HDV)
Hepatitis E (HEV)
Wilson's disease
Primary biliary cholangitis (PBC)
Primary Sclerosing Cholangitis (PSC)
Transplantation (LTX)
Tumors (HCC / CCC)
cirrhosis

Alpha 1 UK Support Group

English

Alpha-1 Antitrypsin 

The Finnish Kidney and Liver Association

Finnish

Information of Liver and Kidney diseases in children