European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialised treatment, knowledge and resources.

The objectives of the ERN’s are to:

  • improve clinical care by development of guidelines, training, sharing of knowledge.
  • secure involvement of key stakeholders including patients and patient organisations.
  • develop research activities as well as clinical trials to improve disease understanding.
  • implement new IT systems to enable clinical collaboration.

European Reference Networks additional information: https://ec.europa.eu/health/ern/policy_en